HISTORY
The Power of Parents
The Arc has a rich history spanning 60 years and marked by accomplishment. We continue to carry out the mission and vision of people with intellectual and developmental disabilities, as well as their parents and siblings.
In 1953, a small group of parents and other concerned individuals came together to act as voices for change. At the time, little was known about the condition of intellectual disabilities (at the time referred to as ‘mental retardation’) or its causes. There were virtually no programs and activities in communities to assist in the development and care of children and adults with intellectual disabilities or to support families.
It was common at that time for doctors to tell parents that the best place for their child was in an institution. Emboldened by their collective desire to raise their children in the home and their stubborn refusal to accept that institutionalization was the only option, The Arc’s founders fought even harder.
Like every parent of any child, they wanted more for their children. They wanted their children to lead fulfilling lives out in the community and not shuttered away in dark institutions. It was in that spirit that The Arc was born.
The Early Days in Story County
(As written in “History of The Arc of Story County”)
In the early fifties, Dorothy Mather and Nina Pritchard looked ahead a few years to the time when their sons would be out of Ruth Willson School in Ames. What was there for them to do? Dr. J. S. Evans, professor of psychology at Iowa State University, encouraged them to talk with Erma Bunge of Cedar Rapids, who had been active in organizing the Iowa Association for Retarded Children, and with members of the Polk County Association for Retarded Children who had organized to seek answers to the same question for their children.
Dorothy and Nina wrote letters asking interested persons to meet with them at the Ames Public Library. Carroll and Edith Jacobson, Roland, were among those who responded. Carroll was involved in parent activities at Woodward and became the spokesman for the group. Also interested were Irene and Ray McBurney, Ames. Mrs. McBurney was an elementary teacher who had a concern for the pupils who could not keep up with regular class work, as well as for those who could not meet the educational requirements for entering school.
As a group, they decided to meet in parks and later in their homes for a social experience for their children and a discussion time for adults. By 1953, they decided to take the necessary steps for becoming a local unit of the Iowa Association for Retarded Children. Dayton Countryman, Nevada attorney, offered his legal services for that purpose. On a hot July day they met on the Jacobson lawn to adopt articles and by-laws incorporating them as the Story County Association for Retarded Children. They then commemorated the occasion with homemade ice cream.
After continued meeting for a period of time, the group felt the need of a project that would be of direct benefit to the children. Mrs. McBurney offered to organize a private class to be held for six weeks at North Grant school east of Ames during the summer of 1955. She obtained clearance from the State Department of Public Instruction for the project, and signed releases from the parents to absolve her of liability for accidents. Together she and Dr. Evans gave the children the proper psychological testing and her volunteer experiment in education was underway. Through this experience she was able to demonstrate the potential for this type of educational program.
At the end of the summer, Mrs. McBurney offered this project as one for which the Association might assume responsibility. They accepted her offer and began the search for a teacher and a permanent home. An offer came from the Nevada Township School Board to use their vacant country school house for a training center. It was centrally located in the county two miles east and two miles south of Nevada on an acre of ground. Donna Ose, Collins, an experienced teacher whose sister would be accompanying her to the class, was employed to teach the beginning group of five.
The class started their training in September of the same year, meeting twice each week in a building that had stood vacant long enough to be in need of extensive repair. Enough work had been done to get the class going, and Verle and Erma Williams, who lived near by and whose son was in the class, assumed many of the first responsibilities for renovating the building.
With many hours of donated labor from parents and friends who were carpenters, plasterers, painters, and electricians, as well as with help from students at Iowa State, the building gradually took on a new look. Renovation included re-shingling half the roof, replacing a door and broken windows, re-plastering and painting the interior, laying linoleum and installing additional wiring. Also, a new fence was built along two sides of the school yard which adjoined the road. Lack of water was a problem, and a group of service organizations combined to raise money for drilling a well.
At the beginning, lunches were prepared in the hallway by mothers of the children in the class. As a special treat, when one of the classes had a birthday, Jean Henderson, whose daughter attended the Center, made a birthday cake. Later, a new kitchen with eating space and donated equipment gave the pupils an opportunity to share a hot lunch, an important part of their social training. Lucille Weuve, Nevada, was employed to prepare the hot lunches and to assist Mrs. Ose as needed. The problem of being cold in the winter was alleviated with the installation of a donated furnace. The children were transported from their homes throughout the county by their parents.
The Center operated on a shoestring, so to speak. Bake sales were held to raise money. Lunches were served at auction sales. Memorials, as well as donations from organizations and individuals all helped to pay the bills.
…and so The Arc of Story County began
A History of Name Changes
- 1953 – 1973: National Association for Retarded Children (NARC)
- 1973 – 1981: National Association for Retarded Citizens (NARC)
- 1981 – 1992: Association for Retarded Citizens of the United States (ARC)
- 1992 – Present: The Arc of the United States (The Arc)
Changing with the times
We, as an organization have been sensitive to the impact of terminology on our constituency and have adapted accordingly. As the words ‘retardation’ and ‘retarded’ became pejorative, derogatory and demeaning in usage, the organization changed its name to ‘The Arc.’
Today, the term ‘mental retardation’ remains the terminology used in the medical field and referenced in many state and federal laws. However, ‘intellectual disability’ and ‘developmental disability’ are making their presence known, and we are doing everything in our power to make sure they’re adopted more broadly.
We strongly believe the only ‘r-word’ that should be used when referring to people with intellectual and developmental disabilities is “Respect.”
https://youtu.be/NS-aJuHirmY
1953 | Incorporation of Story County Association for Retarded Children by Dorothy Mather, Nina Pritchard, Irene and Ray McBurney, Carroll and Edith Jacobson, Betty Scheuermann. Carroll Jacobson is elected first president. Governing board includes president, vice-president, secretary, treasurer, chaplain, past president and five additional directors. Dues are $2.00. |
1955 | Irene McBurney conducts Special Education Demonstration Project at North Grant School. |
1955 | ARC starts and finances the Story County Training Center located in a country school house south of Nevada. Five “trainable” students are taught by Donna Ose twice each week. |
1959 | County assumes partial financial responsibility for the Training Center. The class is relocated in a Nevada home adjacent to central school. |
1961 | ARC begins participation in Coffee Day fund raising activities with Iowa Restaurant Association. By now the Training Center has nine children enrolled and is called the Story County Retarded Children’s School. ARC membership dues are $3.00 per couple or $2.50 for single membership. |
1962 | ARC publishes first newsletter. |
1967 | ARC starts and finances Hope Pre-School located in Collegiate Presbyterian Church. Five physically and mentally disabled children are taught two hours daily by Jan Stromen and volunteers. |
1968 | ARC finances start up of craft classes. Classes are located in the Octagon Building and organized by Jan Rhinehart. |
1969 | ARC members, Paul and Ann Bellinghausen organize Bowling Program. Irene McBurney chairs Scholarship and Career Day Committee to promote student interest in professions related to mental retardation. |
1970 | ARC cooperates with Extension Services to start up a summer camp program held at 4-H Camp Center for retarded citizens of Story, Boone and Dallas Counties. |
1970 | Harlan Elementary School in Ames begins offering a class for “young trainables,” graduates of Hope Pre-School for Handicapped Children. Membership meeting now held every other month rather than monthly. |
1971 | ARC starts and finances an Activity Center located in Collegiate Presbyterian Church. Planning committee comprised of Bob Samuelson, Wayner Rhinehart, and Eleanor Elbert. Jennifer Pagoulates is hired as director. Center relocated to 202 ½ Main Street. |
1972 | ARC members incorporate a new agency, the Association for the Development of Physically and Mentally Handicapped Children and Adults to operate the Activity Center. Later to become Story County Developmental Center (SCDC). |
1975 | ARC member, Ellen Hadwiger, conducts a survey of housing needs.ARC members incorporate a new agency, Mainstream Living to develop a group home for children. Paulette Simons is hired as first director. ARC changes name to the Story County Association for Retarded Citizens. Budget allows $450 for state and national conventions. |
1975 | Ames School District assumes responsibility for Hope Pre-School. Program remains at Collegiate Presbyterian Church. ARC makes final contribution of $1000 to the Pre-School Program. |
1976 | Mainstream Living opens second home for teenagers with ARC support. |
1976 | Formation of joint board for Mainstream Living and Story County Developmental Center. Reno Berg is hired as director of both agencies. |
1977 | Mainstream Living opens third home for young adults with ARC support of start-up costs. Dr. Marvin Julius is named “County Advocate” for persons with mental retardation. |
1978 | ARC (Beth Cheville) purchases books and pamphlets costing $169.18.Materials will be donated to libraries in Ames, Huxley, and Nevada and will be listed in the ARC newsletter. Ames-Gilbert United Way allocation for 1978-79 is $12,000. ARC memberships are $10. |
1979 | First Advocacy Committee is formed, Marvin Julius, chairman; Ellen Hadwiger and Arlo Ledet members. |
1980 | ARC helps start up of Pilot Parents in Ames. |
1981 | ARC assists with NORMALCY, a new organization recognizing Mainstream action linkages for county youth. NORMALCY committee report projects Story County needs for 1982-87. |
1983 | ARC name is changed to Association for Retarded Citizens/Story County. United Way allocation to ARC is $14,000. |
1987 | Story County Board of Supervisors appoints the Community Life Program Committee to develop plans for relocating County Care Facility residents in the Ames community. Arlo Ledet, ARC board director is selected to chair committee. ARC members also participate on the Task Force for Integration. |
1990 | Marilyn Johnson becomes part time consulting Director. |
1991 | Association for Retarded Citizens / Story County receives a three year Federal grant for respite care. Emmaly Burklund, owner and Director of Hilltop Daycare coordinated the project. ARC members who are parents of young children with mental retardation and require special health care form a committee called Community Options. |
1993 | Organization name changed again to The Arc of Story County to reflect the “people first” philosophy of our organization and draw in alignment with the national level which is now known as “The Arc: A National Organization on Mental Retardation”. |
1994 | “Handed over our housing fund of $50,000 to North Central Human Services to prepare for the opening of the ICF-MR homes in Nevada.” |
1995 | New Executive Director hired, Laurie Ertz. Part time at 10 hours per week to coordinate respite program funded by Story County after the Federal Grant was complete. |
1996 | Active Lifestyles program is added and The Arc begins coordinating the local Special Olympics program. Teen Respite Retreats are also added as a program offering. |
1997 | The Arc receives a grant to pilot a program for families called Children At Home. |
1998 | Members of The Arc led by Rev. Tom Prochnow begin Faith Fellowship, a faith sharing opportunity for adults with disabilities. |
1999 | Long time members of The Arc, Joe and Lois Johanns embark on a journey to start a new Christian living community for persons with autism and behavioral challenges – Friendship Ark homes. |
2000 | The Knights of Columbus sponsor our first Viva la Arc! Casino Night. |
2001 | The Arc moves to 430 Fifth St. in Ames to open its first office. |
2003 | People First and Best Buddies are two new programs added for self advocates -adults with intellectual disabilities. |
2005 | The Arc expands the Executive Director position to full time. Members and staff of The Arc of Story County continue to work towards enriching the lives of persons with intellectual and developmental disabilities. |
2006 | In addition to communities throughout Story County, Ames, hosted the Special Olympics U.S. National games. The Arc board members were involved in a variety of activities related to the games |
2006 | October 2006: Laurie Ertz, Executive Director of The Arc of Story County submitted her resignation effective December 1st. |
2006 | The six-year-old “Viva ‘la Arc” annual fundraising event, sponsored by the Knights of Columbus, raised $4,000 |
2007 | Jay Lettow is named Executive Director of The Arc of Story County |
2007 | The Arc became a member of the Ames Chamber of Commerce. |
2008 | The first “train the trainer” session for the newly formed Transportation Training Program was provided to teach people with disabilities how to safely and confidently use CyRide public transportation. |
2008 | The Arc of Iowa’s State Convention was held in Ames and hosted by The Arc of Story County. Nationally known disability advocate presented the program and Iowa Governor Chet Culver attended as the lunch speaker. |
2009 | The Arc of Story County moved its offices to 130 South Sheldon Avenue, Suite 302 in Ames. Several human services agencies are housed in the building owned by Collegiate United Methodist Church. Some construction was done to adapt the office space to The Arc’s needs and a ribbon-cutting ceremony was well attended. |
2010 | Flooding in Ames caused the closing of 20th Century Bowling where The Arc recently celebrated the 40 year anniversary of the bowling program (1959-2009) The bowling program continued with a new relationship and tradition with Perfect Games also in Ames |
2010 | The Arc recognizes the volunteer relationship and financial contributions from Iowa State University student fraternity Pi Kappa Phi with a special bowling event. |
2010 | The Arc developed a volunteer relationship with the Iowa State University Student Athlete Advisory Council to assist with special events and the Active LifeStyles program. |
2010 | Executive Director, Jay Lettow was selected to attend national “Getting Real” conference hosted by FEMA, to bring together emergency management officials, disability advocates, in order to plan for the entire community. The Arc then helped facilitate local conversations and the development of the Story County Accessible and Functional Needs Shelter Task Force. |
2011 | The Arc sponsored co-statewide “Enable Us – Iowa Partners in Preparedness Conference” to discuss the latest issues in preparing and responding to disability communities during emergencies and disasters. |
2011 | Tricia Crain was named the Executive Director of The Arc of Story County. |
2012 | Executive Director, Tricia Crain and Board of Director member and Self-Advocate, Koki Nakagawa attended the Self-Advocacy Summit in Chicago, Illinois. |
2013 | The Arc of Story County had a record number of athletes register for the Active LifeStyle programs. Bicycling was added to the list of Special Olympics events. |
2013 | The Arc of Story County had athletes participate at the Big 12 Gymnastics Championship and the Big 12 State Indoor Track Meet. |